Wednesday, December 31, 2008
All in all we had a fun day. Of course the ride home was a nightmare it was double of what it should be. It got really windy and with all the snow already on the ground we had major whiteouts. FUN FUN FUN!
Sunday, December 14, 2008
We drove to my brothers house 2 hours away with grandma and grandpa. I am not sure why but grandpa thought it would be a good idea to have a limburger sandwich before we left. Jordan walked into the house and said eww what is that smell? He smelled grandpa's breath and made him go brush his teeth after telling him that he was in so much trouble. Well you can see where this is going major gassy car ride. You have to remember Jordan has extra sensitive taste and smell sensories. Yup it was a long car ride.
When we get to my brothers the first thing Jordan asks for is some milk. They tell him we are out and he says OK. I brought along a can of Menudo in case he wouldn't eat anything else. I know this is a weird food for a sensory child. He loves this and luckily it is GFCFSF unfortunately is it $3.50 a can. When mom and dad go away for the winter I am going to make a big batch in their house. That way their house will smell not mine. He did eat some jello which I haven't taken away yet but I will. I have found that agar powder in juice will make a jello like dish I am going to try that but at $34.00 I think I will wait a bit on that.
I stocked up on yummy earth lollypops and drops to send to school because for some reason they want to keep giving him treats. I understand that speech teachers like the suckers because it get the mouth ready but come on the kids don't need any more crap.
Oh yeah if you were wondering about the party it went really well. I did notice that Jordan played better with his cousins. Usually when we go there he just finds a toy and plays with that and other than chasing them around he plays alone. This time he really did interact. He got the game for his gameboy that he really wanted so he is happy and doesn't need anything else for christmas. Unfortunately we left his blanket behind. Mark is going to bring it christmas eve but I am not sure we can wait. He did OK without it but it is a heavy blanket and gives him extra sensory input while he sleeps. I already gave a way my xray blanket that I got from the dentist so I need to find something else heavy but soft. I might be making a large rice filled blanket today.
bk: eggs, ham, donut(not gf) and juice
lunch and dinner: Menudo, juice, jello
Friday, December 12, 2008
I talked to his aid about the field trip. I walked into school and just trapped her. It was about time we met. I asked about his lunch and the hot chocolate. She was on top of it. I feel so much better about her I really like his aid and his special teachers I am not so sure about his regular teacher. His mainstream teacher is very nice but she is a bit of an airhead.
I catered to Jordan's craving for pizza tonight. I used regular crust and galaxy rice cheese and pepperoni. He happily ate it. Next time I make pizza I am making a GF crust.
brk: cold cereal not GF, rice milk, and juice
lunch: bologna sandwich with smart balance lite spread, an apple, and juice
Dinner: pepperoni pizza with rice cheese and juice
I know I know to much juice I am working on this also.
Wednesday, December 10, 2008
Sorry to say it took almost a week before he would poop again but he sure managed yesterday. Luckily we were snowed in so the kids were home from school. The consistency was very soft. I haven't seen one like that in years. I have no idea how to get him to go. He believes that he is supposed to keep it in. He keep apologizing for not keeping it in.
Today at school they went on a field trip to a tree farm. It was a very cold day but the sun was shining and he said he had fun. He said the dog that was there ate his lunch. I am upset because he has an aid. Where was this aid? To top it off they offered all the kids hot chocolate. Luckily he declined but come on last I checked hot chocolate has some kind of dairy in it. He has a Dr note that says he is not to have dairy. I swear the school is so uninformed and no matter how many times I try they just don't want to meet with me.
Wednesday, December 3, 2008
Yippee we love snow here! It is so fun. Luckily I invested in a snowblower last year.
I actually tricked Jordan into having some rice milk on his cereal this morning. He didn't eat much but he didn't spit it out either. I guess that is progress. He was so funny. He wants to know when I would have enough money so that we could buy some milk. We are all telling him that we can't afford milk. He saw grandma with some money and begged her to please buy him some milk. Believe it or not he seems to be taking it well.
Perception is everything though. Jeffrey had cereal that he wouldn't eat because he thought I poured coffee creamer on it. It just happens to be the place I am hiding the milk. Once he figured that out he ate it just fine.
The nurse called today with Jordan's labs of course the lab didn't do all the tests so they need me to come back in. This is not the first time they did it wrong. I usually just forget about doing them but luckily this time it was an urine test. I just have to figure out how to get him to walk into the lab. I think I will try the hospital instead of the clinic.
Monday, December 1, 2008
Jordan had his appointment with the allergist today of course Jeffrey decided he was sick and needed to see a Doc. I really liked the allergist he never told me I was stupid or wasting my money looking into biomedical treatments for my son's autism. I think I got the tests that I needed of course after he gave me the lab sheet I reviewed and made him add casein and gluten to the posibilities. It was kinda like my duh moment but I realized something I am strong enough to demand what I want. The Peds had already gone home and since Jeffrey cried through the entire appointment the allergist looked in his ear and said it did look angry in there. He didn't give me anything which is fine since I wouldn't fill it anyway. I am using good old fashion garlic oil drops. The kids hate it but I don't care it works.
Next comes the oh my part. Labs for Jordan. I have been through this before fun, fun, fun. I used to cry my way through them. They tried sitting him in a chair first not a good idea. Then it was on the table with me and 2 nurses, not good. Next we had 3 nurses and me laying on him such fun. He was squirming so much and so upset that he gave himself a bloody nose and screamed really loud but my favorite part is what he said. "I don't like you and the pins, you not nice." I know torturing your child is bad but I was so proud that as upset as he was he was telling me exactly what he thought.
Believe it or not homework was done relatively quickly tonight he had to write 6 words and only dropped his pencil 4 times on the floor.
Every night I get to hear from my broken record son I want a rattouille game.
Saturday, November 29, 2008
Friday what a day. I want milk was first thing I heard. I had already hid all the milk so I just told him we were out. It seemed to work. Of course Jeffrey wanted cereal for breakfast the boy never wants cereal so I had to listen to him whine also about the lack of milk in the house. Which is really funny because jeffrey hates milk. The boys then went to grandma's to play with their cousins and she hadn't hid the cheese or yogurts yet. Luckily the milk was already put in coffee creamer containers. We distracted him all day from dairy unfortunately we just gave him gluten foods but I guess one step at a time. Three weeks dairy free then during christmas no more gluten. By afternoon he seemed o.k.
I woke up this morning to a cock a doodle do. It was my son telling me to get up. He got in bed with me and we had a conversation it was wonderful . He seems to be talking better already and when he asked for milk I just told him we were out.
Friday, November 21, 2008
Jordan finally got his shadow at school this week. It is so nice to not have to spend 2 hours trying to get him to focus on a simple worksheet. I have decided to go cf first over christmas break because then I will have total control.
I have been adding rice milk, very little to the bottom of his milk cup for every meal. He can smell and taste the difference but watches me pour the milk in his cup so can't quite figure it out.
I sent my mom to Whole Foods this week. Which is no small task considering the closest is 1 1/2 hours away. Luckily there is also a Trader Joes there also. I had her get some hemp milk which is good but not really worth the drive when I can get almond milk in the next town 30 mins away. I also had her see if she could find a cereal that had colors but no dyes or preservatives. She found Fruity Bunnies by Annie's. Now I know that it isn't considered gf because of the oats but it is better than fruit loops. Anyways I showed him the box and made a big deal about this new cereal that I found. He just looked at me like I was nuts. Now you have to know we have a rabbitt and the box has a picture of a rabbit on the front. I hear out of his mouth "Mother (why he calls me that and not mom I don't know) why are you making me eat food for the rabitt." After I quit laughing I had to roll my eyes now what. I was happy that he asked a why question but come on. He ended up taking a tiny tip of the tongue lick before he decided it wasn't any good. That sucks since the cereal was $3.99. I tried feeding it to my older son but I guess everyone was on a yuck kick. Luckily I have a home daycare and they will eat anything.